It was a pleasure to speak with my friend, Sydney, to learn more about her experiences as a parent with a purpose: raising awareness and understanding for Fragile X Syndrome.
We explore what it is like in a marriage, community, and extended family to raise a child who has a unique life experience. We hope that this conversation brings hope and information about this rare occurrence.
Fragile X syndrome (FXS) is caused by a mutation of a single gene — FMR1 — on the X chromosome and is inherited genetically, often unknowingly. Everyone has the FMR1 gene on their X chromosome, but when a mutation occurs, it can cause intellectual disability, behavioral and learning challenges, and various physical characteristics. There is no cure, but therapies, interventions, and medications are often prescribed to treat behavioral symptoms like anxiety, aggression, and ADHD.
To connect with Sydney to talk about FXS or her voice acting, you can reach her through her website or social spaces:
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